As always, if a post is short then it is good news. JD is doing fantastic, obviously!
Each day they bump him up 5ml of milk so we are at 20ml and hoping to keep going. We are optimistic he will get his oxygen tube out in the next day or two (remember he is breathing just fine on his own but this help regulates to ensure his oxygen intake in stable). Removing the oxygen tube will be our next milestone as we can start feeding him by bottle – YAY!
After a few days of losing weight (which is very normal) he gained an ounce last night – Yipee! They weigh him each night and it is the first thing we ask about each morning.
When we first got to the hospital the doctors were in our room about every hour then with each day we started seeing them less and less. The less we see the doctors the less they mess with him, the less they mess with him the more comfortable he is. Yesterday during rounds we discussed a few more tests, which should be a bit easier on him. A few ultrasounds and some labs then we should be good to go for a few days (at least we hope).
Today Nate and I spent Easter morning with Connor (and my parents) watching him have an impromptu Easter egg hunt around Gramps/Lita’s condo. Now whenever he walks into their bedroom he shouts “eggs, eggs, eggs?” In the afternoon we spent time with our littlest man at the hospital helping him open his Easter basket.
In a very strange coincidence, a guy I went to college with had his first little girl on March 24th. She too had a few challenges and had to be taken to Children’s immediately after her birth. While we would never want someone to go through the emotions we are experiencing it is nice to see familiar faces in the hall. We delivered some Easter eggs to their little munchkin this afternoon. Maybe JD will be moved into her room so the can chat at night.
Happy Easter Friends & Family!
|I still think he looks like his big brother|
|Gramps & Lita with their littlest man|
|The splint is only for the IV which was has been taken out - yay|
|Small hands with a strong grip|
|JD's view from Children's Memorial - Hello Chicago|
|Easter Morning (sorry for my hair - ugh) - wish JD was able to join us in this picture|
|Love my new hat|
|Elmo in an egg - Greatest. Day. EVER!|
|Oh boy, another egg|
|Happy Easter James, we cannot wait to spend the next holiday with you at home|
|Happy Easter Baby Blue Eyes|